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Céline Dion documentary to discover her life, battle with stiff particular person syndrome

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A brand new documentary about Céline Dion and her prognosis of stiff particular person syndrome (SPS) is within the works, with Amazon MGM touchdown the worldwide rights to the movie.

The documentary, titled I Am: Céline Dion, follows the Quebec chanteuse as she is recognized with SPS and navigates her first 12 months dwelling with the neurological situation.

“This final couple of years has been such a problem for me, the journey from discovering my situation to studying methods to dwell with and handle it, however to not let it outline me,” Dion, 55, mentioned in a press release.

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Dion shares that she is optimistic in regards to the future and nonetheless plans to return to singing.

“Because the street to resuming my performing profession continues, I’ve realized how a lot I’ve missed it, of with the ability to see my followers. Throughout this absence, I made a decision I wished to doc this a part of my life to assist others who share this prognosis.”

The synopsis for the doc reads: “From visiting her couture touring wardrobe and private results to spending time within the recording studio, the documentary captures a world megastar’s never-before-seen personal life. An emotional, energetic, and poetic love letter to music, I Am: Celine Dion captures greater than a 12 months of filming because the legendary singer navigates her journey towards dwelling an open and genuine life amidst sickness.”

The documentary, which is able to air on Prime Video Canada, has but to be given a launch date.


Click to play video: 'What is ‘Stiff-Person Syndrome’?'


What’s ‘Stiff-Particular person Syndrome’?


Dion first revealed her prognosis to the general public in December 2022, saying the illness doesn’t permit her “to sing the way in which I’m used to.”

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She cancelled the remainder of her world tour final Could, apologizing to her followers.


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“I’m so sorry to disappoint all of you as soon as once more,” she mentioned in a press release. “I’m working actually exhausting to construct again my energy, however touring might be very troublesome even if you’re 100 per cent.

The transfer got here after she postponed her return to her Las Vegas residency in 2021, citing medical points.

This previous December, Dion’s sister, Claudette Dion informed French-language information website 7 Jours that her sister can now not management sure physique motion, however that the last word purpose is “to return to the stage.”

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“In what capability? I don’t know,” she added.

And a number of other months earlier, in August, Claudette mentioned that one other of their sisters, Linda, had moved in with Dion to assist along with her care.

“After I name her and he or she’s busy, I communicate to my sister Linda who lives along with her and tells me that she’s working exhausting. She’s listening to the highest researchers within the discipline of this uncommon illness as a lot as doable,” Claudette informed Le Journal on the time.


Click to play video: 'Celine Dion’s sister says singer has lost control of her muscles due to stiff person syndrome'


Celine Dion’s sister says singer has misplaced management of her muscle mass on account of stiff particular person syndrome


The explanation for SPS, an especially uncommon illness, continues to be unknown, in keeping with Yale Drugs, “however researchers suspect that it could be the results of an autoimmune response the place the physique assaults nerve cells within the central nervous system that management muscle motion.”

The identify doesn’t do justice to the ache and life-changing signs the syndrome causes, Tara Zier, founding father of the Stiff Particular person Syndrome Analysis Basis, informed The Canadian Press final 12 months.

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“Lots of people have challenges with mobility. Many have assisted gadgets for mobility, walkers, wheelchairs. Some individuals are bedridden,” she mentioned.


FILE – Celine Dion introduced in Could she is cancelling her “Braveness” world tour as she continues to obtain remedy for stiff particular person syndrome.


Graham Hughes / The Canadian Press

The Stiff Particular person Syndrome Analysis Basis says “the commonest signs of SPS are muscle rigidity, stiffness and spasms within the muscle mass of the trunk together with the again and limbs.”

These might be triggered by environmental stimuli, like loud noises or emotional stress.

“The muscle spasms might be so extreme they trigger the particular person to fall down. The muscle mass progressively chill out after the stimulus is gone,” the Yale Drugs web site states.

Whereas there isn’t a remedy for SPS, when docs deal with sufferers with this situation, Yale Drugs says they concentrate on managing the signs with drugs “akin to sedatives, muscle relaxants, and steroids.”

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